Tuesday, April 6, 2010

Born Brokenhearted on Valentine's Day


Sunday, February 21, 2010 7:51 AM, MST


So, its been several days since I have been able to update, and we've had quite the turn of circumstances since I last posted.

Cassidy is still in NICU, we've begun breastfeeding, and she is continuing to grow. All the things I thought I knew about having a baby in the NICU have been thrown out the window. Earlier this week, we were told Cassidy had a heart murmur, a common issue, but they were going to monitor it. The next day the murmur was much louder, and they ordered an echocardiogram. The echo took a long time, and there was much discussion, checking, and rechecking. No concrete information was given to me as the scan had to be read by someone, its now been screened on a big screen with lots of people looking at it.

It turns out that Cassidy was born with a very rare congenital heart defect called truncus arteriosus. She is going to need surgery soon to repair the defect and give her a properly functioning heart. Then she will need more surgery as she grows bigger.

Right now we are focusing on getting her to grow big and strong. I will post more when I get a chance, right now I have spent three different pumping sessions typing this out, and now I have to head back to the NICU to nurse my baby.

Thanks for the prayers and support!

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